Comments on: Lillian’s Story: Cerebral Palsy treated with Cord Blood

By: Nicole G

Nicole G — Sun, 15 Jan 2012 16:56:50 +0000

You can give your daughter’s blood for another family member for certain illnesses and diseases, but unfortunately not CP. My son has CP, and when I became pregnant with my daughter I asked the cord blood bank, and they said not to treat CP. It has to be the child’s own.

By: Sarah Hill

Sarah Hill — Wed, 03 Aug 2011 23:12:13 +0000

Hi there! I just recently chose to donate my son’s cord blood to a cord blood bank (stemcyte.com) and I cannot tell you how happy I was to find this blog post. It reassures me that our decision was right in doing so. I am so thankful that your daughter is getting treatment this way.

By: Clinical Manager at ViaCord

Clinical Manager at ViaCord — Fri, 10 Jun 2011 12:50:30 +0000

Hi Irma. Thanks for reaching out. Speaking with your daughter’s Pediatrician about alternative therapies for her CP may be the best way to go. Wishing you well.

By: Irma Pedro

Irma Pedro — Thu, 09 Jun 2011 15:34:58 +0000

My daughter has CP. She’ll be 2 in 4 months and is not walking nor crawling . Unfortunately, we didn’t save the blood cord. What else can be done to treat CP. Who shall I call?

By: ViaCord

ViaCord — Tue, 04 Jan 2011 17:33:49 +0000

Laura, thank you so much for your comment and for sharing your story with us – you’re a very inspiring young woman. Wishing you a very happy new year, from all of us at ViaCord!

By: Laura

Laura — Thu, 30 Dec 2010 17:59:19 +0000

Hi I am a young adult with cerebral palsy cord blood treatment is a new concept to me. I thank you for sharing this information
you can learn more about me here http://lifeofthedifferentlyabled.com/2010/the-person-behind-lifeofthedifferentlyabled-com/

By: Gina

Gina — Wed, 22 Sep 2010 23:20:56 +0000

Keep up the good work LIllian! I was wondering how old Lillian was when she had her infusion?

By: Jill Barber

Jill Barber — Thu, 26 Aug 2010 02:36:42 +0000

Hi Kate,
I am in a similar situation. My 5 1/2 year old daughter has CP and we do not have her stem cells but have her 3 year old twin brothers cord blood cells. Would it be possible to also get on that notification list? I pray every day that this will one day be possible! Thank you!
Jill

By: Kate at ViaCord

Kate at ViaCord — Fri, 13 Aug 2010 19:52:30 +0000

Hi Nicole, there is no current trial that uses sibling cord blood stem cells for CP. However, I will follow-up via e-mail with contact information so that you can be put on Duke’s notification list.

By: Nicole

Nicole — Fri, 13 Aug 2010 19:07:57 +0000

Hi Kahla, I would love to keep in touch with you. My daughter is 3 and has CP. She also just turned 3 in March. We didn’t bank her cord blood, but did bank her sisters in hopes that can be used one day. I would love to know ho Lillian is doing and about her progress. Please email me anytime.