Comments on: A ‘maybe one day’ turns into a chance for Katie

By: NANCY PERINE

NANCY PERINE — Tue, 10 May 2011 22:57:17 +0000

the best thing that ever could have happenned to katie was when god gave her you two for her parents. i will continue to keep her in my prayers. stay strong.

By: Dave Green

Dave Green — Wed, 03 Nov 2010 22:20:34 +0000

Thanks to God,modern medical technology,and your pforesight.Dave G.

By: Gina

Gina — Wed, 22 Sep 2010 23:16:06 +0000

Way to go Katie! I am in contact myself with a Dr at Duke. My daughter suffered oxygen deprivation at birth and as a result will likely have some form of CP. She is only 4 months old and does not qualify for the present trials but I am hopefull there is someway they can help us to get her blood reinfusd, seems to me giving it earlier would help her just as much as Katie. Hopefully I will hear something soon, something good

By: Robin

Robin — Thu, 12 Aug 2010 23:04:53 +0000

HI I too would like the information if you could send it to me about the contact information for Duke. I have a one month old who has down syndrome and we banked his and his sister’s cord blood. Thank you so much!

By: Pete Kosednar`

Pete Kosednar` — Thu, 29 Apr 2010 01:10:39 +0000

Thanks for the updates on Katie. She is in my prayers.

By: Kate at ViaCord

Kate at ViaCord — Wed, 14 Apr 2010 20:16:08 +0000

Hi, Rachel. The Duke study is not currently using sibling cord blood stem cells. I will follow-up via e-mail with contact information so that you can discuss your case with someone at Duke.

By: Rachel Baxter

Rachel Baxter — Tue, 13 Apr 2010 20:39:30 +0000

How did you learn about the Duke study? We have a son 2 years old with Down Syndrome and we banked his 8 month old brothers cord blood at birth. DS kids have hypotonia do you think they would consider doing a transplant on a DS child if they matched? How do I find out?
Rachelbbaxter@gmail.com

By: Amy - Katie's mom

Amy - Katie's mom — Thu, 08 Apr 2010 19:39:27 +0000

It has been just about 3 months and we continue to see incredible progress with Katie that seems too good to be true to be just a coincidence! I appreciate and enjoy reading everyone’s comments, it’s nice to know people we don’t even know are cheering us on!

By: Alison

Alison — Mon, 22 Mar 2010 19:24:07 +0000

What a fabulous story!! Thank you Amy and Paul for sharing your story with us! I pray that Katie continues to make improvements.

By: Steve Scat

Steve Scat — Thu, 18 Mar 2010 14:57:26 +0000

I continue to pray for Katie and her progress thanks for keeping me up to date……