A Gift of Love, the Gift of Life: An Enduring Sibling Connection
It’s nearly impossible to understand how Traci and Kevin felt when they learned that their son, Nicholas, only 2 ½ years old, was diagnosed with leukemia. Doctors told Traci and Kevin that the best course of treatment for Nicholas was chemotherapy. In Nick’s case, doctors recommended a 2 ½ year course of chemotherapy—a harsh protocol with plenty of side effects, but it carried a good chance for a successful outcome. A stem cell transplant was reserved as an option if Nick relapsed.
But when Nick’s oncologist learned that Traci was expecting while Nick was still receiving chemotherapy, the oncologist urged her to bank the baby’s cord blood as a possible source of stem cells for Nick should he ever need a transplant. The oncologist told Traci about the Sibling Connection, a unique partnership between ViaCord and the Children’s Hospital Oakland Research Institute (CHORI). The Sibling Connection provides ViaCord’s cord blood collection and storage for 5 years at no cost to expecting parents who have a child who may be in need of umbilical cord blood stem cell transplantation.
Traci contacted ViaCord and enrolled in the Sibling Connection program. When Brayden was born in August 2006, she and Kevin sent the umbilical cord blood off to ViaCord, hoping it would never be needed.
Unfortunately, Nick’s leukemia returned when he was just 5 years old. Doctors explained that Nick had two treatment options: endure another year and a half of chemotherapy, or test Brayden’s cord blood to learn whether it would be a suitable match. If it was, a cord blood stem cell transplant represented Nick’s best treatment option.
While Traci and Kevin waited to learn if Brayden’s cord blood would be a suitable match (the chance of a sibling being a perfect match is 25% and the chance of a partial match is another 50% on top of that), Nick’s health deteriorated quickly. Doctors immediately put him back on chemotherapy while they considered all treatment options, and Nick’s appendix burst.
Because his immune system was suppressed, infection spread quickly throughout Nick’s body, perforating some internal organs and leaving him extremely ill and needing intensive care. Days later, Traci and Kevin were bracing for more bad news when Nick’s oncologist walked into the ICU. Then they realized he was smiling as he shared unbelievable news: Brayden’s cord blood was a perfect match! Now it has been nearly a year since Nick received a cord blood stem cell transplant with cord blood donated from his brother Brayden.
Today, Nick is almost 7 years old and has just started first grade. It’s too early to say whether Nick will stay in remission from leukemia, but the outlook is promising for a full recovery. And while Brayden is really too young to understand the gift he gave his brother, Nick recognizes their special connection. After getting his blood drawn recently, Nick asked the technician who’s blood it was—his or Brayden’s. Over time, it’s likely he and his brother will understand that their special bond encompasses even more than being brothers.
To learn more about this special story, listen to Nick’s mom, Traci, who recently participated in a special webcast from Perkin Elmer’s podcast series, The Better Chronicles.
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Best wishes to Nick with his new found health and with his first year of school!
We had a very similar situation with our then 2-yr old daughter. Because her leukemia was very rare, her only treatment option was a bone marrow transplant. Unfortunately my unborn baby was not a match for her and neither were her two other siblings. However, we were able to use an unrelated cord blood that had been donated. Today our daughter is a healthy 5 year old! Although our baby’s cord blood wasn’t a match for our daughter, it is a perfect match for our other two kids. We are grateful for the sibling connection which helped us store our cord blood – although we hope we never need to use it!
I as so happy that this story has had a positive ending. I wish both Nick and Brayden long and healthy lives. Always remember the special bond you have.
Good Bless! What an amazing gift to give! This should encourage more & more people to bank! We did! Cord blood helped my best friend live longer! Keeping passing the word & educating people!
Wishing Nick the best, I hope everything stays well for him and keep enjoying life!
I wish him all the best!!
We had some what similar situation. But we had only one son, and so went with the option of getting a match for our son using IVF (Test tube baby) and PGD (Preimplantation Genetic Diagnosis) which tells you if the embryo is a match or not.
We finally had a daughter few months back who is a full match for our son, and he will be undergoing Cord Blood Transplant in Jan 2010.
Have faith and believe!! Our prayers are with you and your family!! God Bless!!
What a Marvalous God we have!!!! God Bless you and your family, and Viacord for the awsome job they do!! Best wishes to you all!! You will be in my prayers!!